Terminally ill 25-year-old chooses to die on ‘own terms’ after battling rare illness her entire life: ‘Please let me go’

Knowing that her life will end, the 25-year-old said she has decided to “die on my own terms” with voluntary assisted dying ...
Psychology Today

The Psychological Toll of Living with a Rare Disease

Rare diseases reveal that our sense of identity rests on fragile biological infrastructure, much of it operating outside ...

Chicago civil rights leader Jesse Jackson hospitalized for rare neurological disorder

The Rev. Jesse Jackson is in the hospital with a rare neurological disorder. Jackson's Chicago-based civil rights ...
Bossip

Rev. Jesse Jackson Remains Hospitalized With Rare Condition

Jesse Jackson is in the hospital receiving treatment for a rare condition, but his family has provided an encouraging update.
National Academies of Sciences%2c Engineering%2c and Medicine

Rare Neurological Diseases Action Collaborative

The National Academies of Sciences, Engineering, and Medicine are private, nonprofit institutions that provide expert advice on some of the most pressing challenges facing the nation and world. Our ...

‘Please let me go’: 25-year-old woman chooses to die after lifetime pain from rare nerve disease

Annaliese Holland, diagnosed with a rare autoimmune disorder, has chosen voluntary assisted dying after a lifetime of ...

New Gene-Editing Strategy Could Help Development of Treatments for Rare Diseases

Instead of requiring personalized gene edits for each patient, the new approach could create a standardized method to use for ...

Australian Woman, 25, Opts For Assisted Dying After Long Battle With Rare Disease: "I've Had Enough"

Voluntary assisted dying, also known as medical aid in dying (MAID), is legal across all Australian states for terminally ill ...
AFRO American Newspapers

Rev. Jesse Jackson in stable condition after hospitalization for rare neurological disorder

Rev. Jesse Jackson is in stable condition and not on life support, his family assures. He remains hospitalized with a ...
The Washington Post

Gene therapy offers hope for children with rare diseases

A common misconception about rare disorders is that they only effect a small number of people. However, according to the National Organization for Rare Disorders, around 25-30 million Americans are ...