For many years, cystic fibrosis took a toll on my mental health — long before I was diagnosed. But over time, I began to find meaning in small moments, slowly rebuilding after breaking down. It’s been ...

I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...

Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.

When my friend Michelle and I started a volunteer group, we looked forward to giving back to the community with our free time. What we didn’t anticipate was how deeply we’d become involved in a cause ...

When I was first diagnosed with CF, I wasn’t supposed to live past the age of 8. Then Trikafta gave me the chance for a future I wasn’t prepared for. I’ve built a new life for myself and learned to ...

Growing up with CF created emotional and physical barriers that complicated my friendships and romantic relationships, but I’ve learned how to hold on to the people who truly support me.

My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.

I was diagnosed with cystic fibrosis as a baby, only to be told later that I didn't have it. As an adult, I began to face persistent health challenges and had to become my own advocate, pushing for ...

As a teen, dealing with cystic fibrosis made me feel truly hopeless. But my life transformed when I had a powerful spiritual awakening.

In my pursuit of authenticity, I’ve realized that proudly sharing my story — both as a gay man and as a person with CF — is an affirmation of my self-worth.

I was heartbroken when I learned my baby would be born with cystic fibrosis. However, my son's CF care team changed my perspective and connected me with other mothers of children with CF who became ...