A Day in Our Lives: Managing Leukodystrophy
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A Day in Our Lives: Managing Leukodystrophy
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Understanding Metachromatic Leukodystrophy and Physiotherapy
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Understanding Metachromatic Leukodystrophy and Physiotherapy
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TikTokaliamisbah00245
BEN'S ULTRA RARE DISEASE EXPLAINED #leukodystrophy #rare #explained #caregiver #hope #inspiration
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BEN'S ULTRA RARE DISEASE EXPLAINED #leukodystrophy #rare #explained #caregiver #hope #inspiration
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519 viewsMar 8, 2024
YouTubeDr Arshad Mehmood - Child Neurologist
Metachromatic Leukodystrophy (MLD) is a rare, terminal disease that destroys the white matter in the brain. Three of my four children were diagnosed in 2017 with this genetic disease. Kay watches from above because diagnosis came too late for her. My two boys have gone through bone marrow transplants in hope to stall the destruction of white matter. You can see here, it’s not worked for my oldest son. He is still progressing 💔 #fmld #metachromaticleukodystrophy #onthisday
0:10
Metachromatic Leukodystrophy (MLD) is a rare, terminal disease that destroys the white matter in the brain. Three of my four children were diagnosed in 2017 with this genetic disease. Kay watches from above because diagnosis came too late for her. My two boys have gone through bone marrow transplants in hope to stall the destruction of white matter. You can see here, it’s not worked for my oldest son. He is still progressing 💔 #fmld #metachromaticleukodystrophy #onthisday
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Pachygyria, leukodystrophy, mild cerebral atrophy and Dandy Walker variant.
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YouTubeLearning Radiology from CT Scans with Prof A…
No one is made for this life … we just adapt as we go! Trust Leukodystrophy is breaking our soul to pieces! #leukodystrophy #tubb4a #medicalmom #wth #raredisease
9 months ago
TikTokchronicmomandson
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